I've had an MS flare-up this month that has really kicked my butt in ways that it hasn't in years. I think I can express my pain, frustration, and sadness best through poetry.
I have lived with chronic illness for 22 years
This awful month of cold, snow-darkness
My legs are betraying me again
8 months of difficult work in physical therapy - gone
Three day treatment - did not help
Of course, I will begin again
Through physical pain
Through lack of understanding by others
Through my anger
Through my tears
Through my laughter.
I feel betrayed
By my body - again
By the people in my life who don't really want to hear
about how difficult this is.
I am not feeling sorry for myself nor my friends who live with this disease
Of course, I will begin again.
Through patience with myself and others
Through understanding
Through love
I begin again the daily work of moving my body from point A to B
By not allowing MS to win;
It may in the end,
but that is not now.
So, I begin again
to work hard on moving my body
in yoga
at home
exercise to stave off
weakness,
atrophy,
despair.
I will begin again
To let go,
to heal.
to heal.
That's beautiful, Jeanette!
ReplyDeleteI am so sorry. First of all, it must be so hard when other don't know what it is like. (Including me.) Thanks for expressing it through this poem.
ReplyDeleteWhat can I do to help Jeanette? I am sure with Gordon's schedule you spend a lot of time alone. Can I do anything?